Protecting Your Joints: A Guide for Ehlers-Danlos Syndrome

Joint protection is an important aspect of managing Ehlers-Danlos Syndrome (EDS), a group of connective tissue disorders characterized by hypermobility of the joints, fragile skin, and a tendency to bruise easily. EDS leads to joint instability, which can increase the risk of dislocations, sprains, and strains, so it's crucial to take steps to protect the joints and minimize damage.

Here are some joint protection strategies for people with EDS:

1. Strengthening Muscles:

• Strengthening the muscles around the joints can help stabilize and support them, reducing the risk of injury. Targeting core strength and the muscles surrounding larger joints (e.g., knees, hips, shoulders) is key.

• Exercise programs tailored by a physical therapist can help individuals with EDS strengthen muscles without overloading joints.

2. Proper Body Mechanics:

• Using correct posture and movement techniques to avoid putting excessive strain on joints is important. This includes lifting techniques (bending at the knees, not the back), and avoiding hyperextension of the joints.

• Regular rest breaks can prevent overuse of specific joints.

3. Joint Protection Devices:

• Orthotic supports, such as knee braces, ankle supports, or splints, may be helpful for certain joints to provide additional stability and protect against injury.

• Specialized shoes with arch support or custom orthotics can reduce strain on the lower limbs.

4. Avoiding High-Risk Activities:

• Some physical activities may put excessive stress on the joints, leading to dislocations or injuries. High-impact sports, activities with a lot of twisting or turning, or those requiring high levels of flexibility (such as gymnastics) may need to be limited or avoided.

• Swimming is often recommended as a low-impact exercise option.

5. Gentle Flexibility Exercises:

• Although flexibility may already be increased in people with EDS, engaging in gentle stretching exercises can help maintain range of motion without pushing the joints beyond their limits.

6. Pain Management:

• Many people with EDS experience chronic joint pain. Pain management strategies, such as physical therapy, pain medications, or acupuncture, can help minimize discomfort and improve function.

7. Weight Management:

• Maintaining a healthy weight can reduce strain on weight-bearing joints such as the knees, hips, and spine.

8. Monitoring and Early Intervention:

• Early intervention for any signs of joint damage or injury can help reduce long-term problems. Regular check-ups with healthcare professionals familiar with EDS can ensure that any issues are addressed promptly.

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Because the symptoms of EDS can vary from person to person, it's important for individuals with EDS to work closely with healthcare providers, including physical therapists and geneticists, to create a tailored management plan that prioritizes joint protection and overall well-being.

Call Engage Therapy and Wellness at 315-810-2423 to learn more about how our therapy team can help!